Esther Tela Free speaks

You woke me up

4 months , 16 days

I said I couldn’t wait til the good parts. Well. They arrived and I’m writing about it today. August 23rd, 2017.

I have an internship I love. I have a fantastic roommate. I have a best friend. I have the right to do anything I want to and I’m enjoying it. I’m trying different and new things. Reading a lot of books. And heading into the past by trying to teach myself computer stuff. I really enjoy it. I’m close with my mom. I have tickets to 4 concerts and I have 2 plane tickets with a 3rd and 4th on the horizon. The universe still gives me clues that I’m on the right path. That’s the thing that keeps me calm and sane. I know I’m on the right path.

I’m really bummed I missed that job opportunity with Bandcamp. I  keep an eye on their jobs page in hopes that one day the browser will provide me with that path that I glimpsed but ended up turning away from. I’m slowly drifting back in that way but it’s a light airy place with no solid ground except for my own two feet and that is a new experience for me. I’m solely dependent and responsible for myself and my decisions. I didn’t know I had been living my life so poorly. I mean I knew. But I didn’t think I would change. I thought life was over. My doctor had said I would be on them for the rest of my life, but as it stands I’ve had one craving and finding 4 opiate pills the other night didn’t even trigger the cravings.

Clearing out my room was an exorcism for me and something that has cleared my head. I have plans through the fall and that makes me happy. I’m not looking really any further then that. I am definitely still falling into old patterns and having issues that have haunted me all my life. But in other ways, I’m completely different. I eat olives. That’s huge. I used to not even want to get near one. I never gagged like an old friend of mine would if they tasted olive juice but it was something I avoided in my diet at all times. I have to buy cans weekly now if that tells you anything. I make my bed every day too. That is another change that is small but definitely noticeable to me in the way my brain is acting. I’m still having issues with words. I’ll get stuck, not able to find the right word for what I want to say. It’s frustrating and not getting any better after 16 months in recovery. I fear that it will stick around and I don’t know how I feel about that. I worry that my friends and acquaintances will judge me as not being as intelligent as I know I am.

I guess I’ll end this with the fact that I do have the story started. It’s just set to publish after court.

I told him I’d leave if he put his hands on me.

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August 24, 2017 Posted by | hubby, Uncategorized | , , , , , , , | Leave a comment

Another plug in the wrench was my insurance situation. If you’ve never been chronically ill, you may not understand the hoops we have to jump through in order to get care. The doctor I was seeing worked out of a certain health care system. That system did not give me options such as physical therapy, or seeing any sort of psychologist. Due to the lack of hospital beds the day I almost died, , the hospital transferred me to another hospital in a completely different health system. Because I wasn’t a member of this hospitals system, I had to find an equipment company that would rent me the equipment. Somehow, due to the diligence of my team at kp, I spent the last 15 or so minutes of my hospital stay with a rep from one of two in the city that I could use. The hubby and I were relieved to have me rolled out of the hospital with rather proper breathing machine for me to sleep healthily. I remember sitting in the passenger seat, at dusk, with the window rolled partway down, feeling the breeze on my face and watching the pinkish colored sunset sky to the left of me. We drove steadily up the highway and soon I was home.

I knew, after we got front row, reserved balcony seats for my new favorite band, that I would have to walk up a flight of stairs. The year previous, I had seen ghost at that same venue. It is one of the only hazy memories I have of 2015. I started walking up that flight of stairs and it was so hard and tiring that I was forced to sit between the two sets of stairs. 

Things were bad in 2016. I mean really bad. I was completely losing my marbles. You start to wonder whats going on. I’m not talking about crazy like thinking someone’s in your computer crazy though. I’m talking about how I couldn’t draw a clock. K would say, draw three o’clock and I couldn’t.

I now had a goal to help me recover from this experience. I had four months to get myself standing, and walking enough to park a few blocks away and stand in line, amped of course, up those two flights of stairs that would take me to my coveted seat for the best medicine there is. Live music.

The first few weeks home weren’t easy. My memory was fucked. I would get a phone call and forget what was said. This was frustrating to my poor hubby. He had nursed me from almost the entire time we’ve been together. I was able to some what nurse him when he suffered a diagnosis of congestive heart failure and a subsequent cardiac arrest a few months later but I had not been able to sustain that for very long.

The years I have had to use the wheelchair, prior to my hospitalization, are a mix of frustration and the desire to get my musical medicine without experiencing the major stress that comes with traveling and using a medical assistance device. Unfortunately, at a major music venue in the Pacific Northwest, I experienced one of the worst experiences at a live concert. And I’ve seen one band almost a hundred times and not just in one state. I got to the hotel in the city near the venue and made it to the campground in the rv we had rented. When we arrived at the campground the campground guy did not flag us into the handicapped camping section. He put us up into a top section on a decline and the paths were made of gravel. To someone in a wheelchair that is like saying we don’t give a shit that you are here. That was the first indication that this trip and concert just might not be the experience I was used to having. The day dawned bright, warm and cloudless and I looked forward to having a wonderful time and tried to have a positive attitude. As we got ready to head to the show is when I noticed the gravel and realized I would have to walk. In the condition I was in, that was a hard thing to do. And I was fighting the urge to just crawl up and die. I was already embarrassed enough to be using a wheelchair but I was also fighting a confidence issue as I had gained significant weight as a side affect from the steroids. I got down the hill and waited at the bus stop for the handicapped bus the venue provided which I am thankful for. I was loaded into the bus when it arrived and it was my very first time in a handicapped bus.

I would like to say that all of the other handicapped people that I have met in my concert travels have been wonderful human beings.

As the lift rose up, I rolled into what I thought was the area to be. Now my memory is fuzzy here, either he didn’t strap me in, or I said I was ok, I’m not sure. But what happened next, I won’t forget. The bus driver got into his seat. He pulled the break and the bus slowly rumbled to life and out the gravel road. At the stop sign, there was a small hill and as he stopped, my wheelchair violently rolled forward and smashed into either the seat or another wheelchair in front of me. I untangled myself and rolled back into my spot. As I did that I realized that my wheelchair had been damaged. Wheelchairs are expensive and mine hadn’t been covered winsurance and knowing I would have to order a new one, mine was a special light weight one,I would have to fork over the cash out of pocket too. I compartmentalised the issue and tried to look forward to three hours of music and bliss that came along with live music. We were drive to the back gate entrance and since I was very early and the only wheelchair, I figured I’d be ok, but what I didn’t know at the time, is at this time, they did not have a section for wheelchairs. I asked the security guard about this. He smiled widely, took ahold of my chair and wheeled me right out into the general admission area in front of the stage. The live concerts I usually go to, have rabid fans that wait hours so they can hang on the rail, right in front of the band. I knew this because I used to be just one of those persons. I spent many hours waiting in line at venues across the country. Madison Square Garden in NYC, The Mothership in Hampton, Va just to name two of my favorite experiences. When I was wheeled out to the GA section, there were already rows of fans claiming their spot for the show. I was a pretty meek person back then, and didn’t have the wheelchair experience yet to know I was not in a good spot to enjoy this concert. I had such a horrible time, and felt it was so wrong that they didn’t have a handicapped section at GA concerts that I contacted the state where the venue was located and put forth in motion a lawsuit. I wimped out about it, but I found out years later, when I returned again to give them another shot, they had a wheelchair section and I’ve since enjoyed a few shows there.

Before I got sick, my hubby, who is a music extraordinaire both in knowledge and in dj abilities would try to play different music for me, and I found myself stuck in a pattern with not just my health issues but also in my musical tastes. When I returned home, I found myself drawn to much heavier music than I had in a long time. I also found a new respect for many legends I had just sort of turned my snotty-at-the-time nose up at. Now, I was blown away by the intelligent and soulful lyrics of musicians from all around the globe. Germany, Sweden, and even some of my own fair city’s known bands….

April 7, 2017 Posted by | ankylosing spondylitis, anxiety, death, fibromyalgia, hubby, Memories, MOF, music, pain, phish, reality, sickness, The Gorge | Leave a comment

Level 3

Ready Player One..one of the best books I’ve read in the past few years. I remember that one because the simliarities are so striking and it makes me want to turn things off. But then I turn on the music (led zep pandora today) and it all starts to melt away. Things are finally starting to smooth out. We are able to communicate again. JP. *clap clap clap*

I’ve found that fuzzy brain makes things super hard. As do other things that are obviously the synapses or connections. Was it the opiates? I still get a rush sometimes. The same one I got when I’d feel a pill coming on. I have a lot of harbored anger towards Dr. G. But at the same time, I did what I could when I went down that path and I’m glad I did.

Sleep is fleeting. I have all of these choices and have no idea which one is going to work >patience, one of my worst issues..lmao….

March 15, 2017 Posted by | Books, fibromyalgia, hubby, music | , , , , , , | Leave a comment

Reality hits me in the bum

Reality hit me in the face when I found out who’s really behind it all, behind ‘the stalker’. I never in a million years would have expected it to be who it is. And of course they are so low and so obsessed to have even found this blog which isn’t even easy for ME to find. Let me catch you up to date. For about 3 and a half years I have had a stalker online.  It started on rec.music.phish where I was a well known poster and then followed me no matter where I went on the internet. Every new name that I was use, they would find out. I used to think it was one person, found out a few of the people it was, but now, it’s different. One person is doing it and we have been able to use ISP’s to find out who it really is behind the whole thing. This person was someone that I trusted and know well from Phish tour. In fact Ive spent hours with this person and it’s amazing to me what double sides people have. My good ole husband was WAY ahead of me and had it figured out before the IP addresses proved who it REALLY was. The great part about all of this is I just dare them to try and find me again and try and post horrible things again.  They will, I have no doubt. The great part that I was just talking about, I finally figured out that it’s funny to make fun of people with diseases on the inside and it’s even funnier to make fun of fat people. Not, but that’s what they were doing to me. I mean don’t get me wrong. To these people, being fat and having a diseas that has no physical symptoms besides weight gain makes me a target about as funny as John Stewart on a good day. I don’t care anymore and this shall be the last time ‘the stalker’ is ever spoken about and hopefully the last time it’ll be in my brain. I’m puttin’ it in a folder and into the locked file cabinet of my brain of things int he past. It’s time to move on for all of us. I know you are reading this stalker. Just stop it. You will have so much more time for yourself. And it ain’t workin’ on me anymore so either quit, or find a new victim. Hopefully one that catches you before the end and can prove what a complete and vile asswipe you are. You have done nothing but heap lots of bad karma upon yourself and it sounds like it’s starting to kick in. Have a fun ride on the way back down.

June 18, 2007 Posted by | ankylosing spondylitis, e-friends, hubby, karma, phish, reality, stalker | Leave a comment

Dreams , beams, automobiles

I really wish that the holes in my memory would start giving it up. While talking to the hubby yesterday I wanted so badly to tell him a story that involved me and someone else and something that happened years ago but I could only remember an outline of the stuff and I told it as best I could. Didn’t sound as great as I  had hoped and I wish there was some sort of pill to take to help you get your memory back.

A religious ambassador. I don’t know why we don’t have them. I mean what a grand way to help ease the wars in the world right now. Every religion would have someone that speaks for them, and perhaps we could acheive peace in this world but at the same time, I don’t even know if that’s possible.

I’m at work right now, passing time while the boss is on a (ring) conference call. Sometimes I wonder if the redhead thinks about the fans as much as a lot of us think of him. I know my husband and I have both had dreams with him in them, and it makes me wonder, on those same nights, is the redhead having dreams about his fans? Now I’m not saying he’s necessarily in our dreams but I wonder if he himself dreams about being onstage. The story he told, bout the dream that he had involving the apple and the one tooth never really struck me as a real dream, but if it was, man he has fucked up dreams.

One lasting thing from my ‘episode’ of the month of Feb, is the high beams thing. I still to this day am wondering why ‘it’ told me to keep my high beams on. I still want to know who ‘it’ was, and why I knew where to go and what was guiding me. I was never scared and I hated it that I scared the hubby. I wish he could have felt what was in my heart that night. I felt elated. I felt light as a feather. I felt like I could do anything, save someone’s life, something really dramatic. I felt that I could save the world that night if I needed too. Sometimes I wonder if all I really want is to just be loved for the rest of my life and if that’s the case then I’m all set. The hubby is the one, there has never been any doubt, and he loves me perfectly. I have no complaints (except maybe how he never wipes up his crumbs while making toast) but those aren’t real complaints. The best part about my life right now is that I’m ‘livin large’ as me and the hubby have been saying and even though we are still living somewhat check to check, we do not lack anything including love and that makes us lucky in today’s world. I am thankful to you redhead for the music that you gave to us. It also helped to shape our relationship, and I am thankful most of all to you hubby, even though you aren’t going to read this, I am very thankful that you fell in love with me as hard as I fell in love with you. I will love you forever. Promise Promise.

March 27, 2007 Posted by | hubby, karma, love, mt hood, phish, positivity, reality, Trey | Leave a comment

Today was an ok day

It’s not quite over yet, though I am debating missing my PT today because my hips are so sore, but the longer I sit, the more I know I have to go. If I start skipping at the beginning it doesn’t forbode well for me to have a different outcome. I couldn’t do the home exercises because of the pain last night and this morning so it’s imperitive that I go to the gym and get led in some more exercises. They are here to help me, not defeat me, not put me down, they are with me in this fight to win the battle of my immune system. As long as I stay strong and keep that positive attitude then I’m already 50% better then I could have ever hoped to be. Maybe 33% I haven’t decided how much I really do have under my own control. Placebos work, its been scientifically proven, so that means that if I fight as hard as I can mentally and get rest, and do all the things they ask me to do, then I can get through today. It’s hard for the hubby right now I know. He can sense that I need help but it’s help that I don’t think he can give me. If he were a physiologist or physical therepist, then maybe. But what he does help me with is everything else in my life.

I think I’ll turn on some music and see where the internet takes me. Come along for the ride..bbinb.

February 26, 2007 Posted by | hubby, kneecap, love, patella, positivity | Leave a comment